Chain of Trust

TSEC e-Health (Thalassaemia Specific Electronic Communications)

Although extensive studies on the effectiveness and cost efficiency of e-Health services do not yet exist, there is a growing body of evidence showing their great potential benefit for patients and health professionals, the end users of such services.

As Health Commissioner Vassiliou added at the time “The key to success is the full involvement of citizens, patients and health professionals”

http://ec.europa.eu/information_society/newsroom/cf/itemdetail.cfm?item_id=4465

The “Chain of Trust” project aimed to assess the perspective of the main end users of e-health services across the EU with the purpose of seeing if and how views have evolved since the initial deployment of e-health and what barriers there still are to have confidence in and acceptance of this innovative type of services. The vision informing the project approach has been high quality, patient-centred, equitable health care for all patients throughout the European Union: good practice and challenging of bad practices; equitable access to treatment and care and health-related quality of life at European level and at member state level. The project has resulted in a unique and unprecedented assessment of the views, needs, benefits and barriers related to e-health from the perspective of patients and health professionals.

Through a sustainable partnership between their leading representative EU umbrella organisations, the project focused on patients, doctors and nurses and at a more secondary level on pharmacists, since for these stakeholders e-health is still at a speculative stage. All target groups had the opportunity to voice their views through various methods focused on gathering qualitative information, that reflect the diversity of users and driven by a participatory approach.

The project managed to increase substantially the knowledge and understanding of the specific perspective of health professionals and patients amongst various stakeholders. The findings and the recommendations constituted a unique tool to inform policies and decision-making at various levels: in primis the EC, Member States health authorities, the EP, WHO, OECD, Council of Europe. This new knowledge base and awareness was of significant added value for the implementation of the EC Communication on e-Health that calls for recommendations from patients’ and health professionals’ groups. It also contributed to supporting the work of the e-health High Level Joint Initiative where a specific Task Force on ‘trust’ has been set up.

See project at:

Thalassaemia specific electronic patients’ records

CoT

Chain of Trust (Patients and Health professionals’ perspective on…

Chain of Trust Project: Public Health Program of the European Union managed by the Executive Agency for Health and Consumers (EAHC).

The Chain of Trust was a two year project which started off in January of 2011 and ended in January of 2013 with the overall objective of assessing the perspective of the main end users of e-health services across the EU to see whether and how views have evolved since the initial deployment of e-health and what barriers there still are to building confidence in and acceptance of this innovative type of services.

The project assessed the views, needs, benefits and barriers related to e-health from the perspective of patients, doctors, nurses and pharmacists.

Through a sustainable partnership between their representative EU umbrella organisations these telehealth user groups had the opportunity to voice their views through various methods focused on gathering qualitative information and driven by a participatory approach.

Interfusion lead activities on the ‘Assessment of patients and health professionals’ perspective on telehealth’ Work Package, in cooperation with the Thalassaemia International Foundation (TIF). The work plan included a literature review, an online survey and the implementation of national workshops and European focus groups for the end users of telehealth applications.

Furthermore, Interfusion supported the activities of the other Work Packages by providing input on the doctors’ perspective on telehealth and involving its members in the dissemination of outcomes.

For more information on the Chain of Trust project, please visit the project website at: www.chainoftrust.eu

INCA

INCA (Inclusive & Integrated Healthcare)

INCA (Inclusive Introduction of Integrated Care): CIP-ICT-PSP-7 program.

The main activities, pursuits and outcomes of the INCA project throughout its lifecycle, have been the following:

1. To improve outcomes for patients; creating access to better integrated socio-sanitary care e-Services (integration of health care, social care, long-term and self-care in any kind of health / living conditions) outside of hospitals; reduce unnecessary hospital admissions and enabling effective working of professionals across provider boundaries.

2. Deployed across “cloud computing” approaches, in order to reach its outcomes in a highly ambitious way, with clear quantitative indicators, assuring the best value for money using INCA against conventional alternative of Public or Private silos of eHealth service deployments.

3. Improving the health services through better coordination across different levels of socio-sanitary care and from different providers within each level.

4. Contributing towards first-time introduction of integrated care programs and coaching of “first time deployment” by “early adopter” regions in Member States or associated countries, including remote “proactive” monitoring of patients.